Office of the National Coordinator (ONC) for Health IT:
Public Comments Sought on Personal Health Records
by Dec 10, 2010
Emailed by ONC on Nov 1, 2010
In conjunction with ONC’s upcoming PHR Roundtable, ONC is seeking public comments on issues related to personal health records. The public comment period is open now through December 10. ONC would like the public’s input on the following topics:
- Privacy and Security and Emerging Technologies
- Consumer Expectations about Collection and Use of Health Information
- Privacy and Security Requirements for Non-Covered Entities
Visit the ONC website to submit your comment by December 10:
This link goes to an ONC page with the content that’s posted below.
ONC Seeks Public Comments on PHRs
Excerpted from ONC site on 11/1/2010.
[Click here for ONC Public Comments Page on PHRs]
The Office of the National Coordinator for Health Information Technology is seeking public comments on issues related to personal health records. Please submit comments by visiting one or more of the following questions. Please note that your name and comment will be placed on the public record of this roundtable, including on the publicly accessible HHS/ONC website (links below).
Thank you for your submission. (Note: The links below will take you directly to the ONC blog pages for posting.) 1. Privacy and Security and Emerging Technologies
What privacy and security risks, concerns, and benefits arise from the current state and emerging business models of PHRs and related emerging technologies built around the collection and use of consumer health information, including mobile technologies and social networking?
2. Consumer Expectations about Collection and Use of Health Information
Are there commonly understood or recognized consumer expectations and attitudes about the collection and use of their health information when they participate in PHRs and related technologies? Is there empirical data that allows us reliably to measure any such consumer expectations? What, if any, legal protections do consumers expect apply to their personal health information when they conduct online searches, respond to surveys or quizzes, seek medical advice online, participate in chat groups or health networks, or otherwise? How determinative should consumer expectations be in developing policies about privacy and security?
3. Privacy and Security Requirements for Non-Covered Entities
What are the pros and cons of applying different privacy and security requirements to non-covered entities, including PHRs, mobile technologies, and social networking?
4. Any Other Comments on PHRs and Non-Covered Entities
Do you have other comments or concerns regarding PHRs and other non-covered entities?