PHR Roundtable: December 3, 2010
(Excerpted from ONC site on October 22, 2010)
The Office of National Coordinator for Health Information Technology (ONC) will host a free day-long public Roundtable on “Personal Health Records — Understanding the Evolving Landscape.” The Roundtable is designed to inform ONC’s Congressionally mandated report on privacy and security requirements for non-Covered Entities (non-CEs), with a focus on personal health records (PHRs) and related service providers (Section 13424 of the HITECH Act).
The Roundtable will include four panels of prominent researchers, legal scholars, and representatives of consumer, patient, and industry organizations. It will address the current state and evolving nature of PHRs and related technologies (including mobile technologies and social networking), consumer and industry expectations and attitudes toward privacy and security practices, and the pros and cons of different approaches to the requirements that should apply to non-CE PHRs and related technologies.
Registration is available as of Oct 26, 2010, click here.
Public comment will open in October.
Friday, December 3, 2010
8:30 a.m. – 4:30 p.m. (Check-in begins at 7:30 a.m.)
FTC Conference Center
601 New Jersey Avenue, NW
Washington, DC 20001
or via Webcast
PURPOSE OF ROUNDTABLE
The purpose of this Roundtable is to collect information that will assist in preparation of the Congressional report mandated by Section 13424 of the HITECH Act, which directed the Office of the National Coordinator for Health Information Technology (ONC), in consultation with the Federal Trade Commission, to conduct a study and make recommendations related to the application of privacy and security requirements to non-HIPAA Covered Entities, with a focus on personal health record vendors and related service providers.
AGENDA and PANEL DESCRIPTIONS
7:30 a.m. Facility Opens. Check-in.
8:30 am - Welcome: David Blumenthal, MD, National Coordinator for Health Information Technology
8:45 am – Setting the Stage: Joy Pritts, JD, HHS Chief Privacy Officer
9:10 am – Panel One – PHRs: Origins, Developments, Privacy and Security Practices
The first panel will describe and discuss the history and current state of personal health records (PHRs), including types of PHR vendors, business models, and privacy and security practices.
10:45 am – Panel Two – PHRs and Related Technologies: New Forms, New Audiences, New Challenges
The second panel will discuss how PHRs are evolving, including the connection to mobile technologies and social networking, and will address privacy and security practices and challenges in this evolving context. The panelists will address how PHR vendors are reaching out to new markets and patient populations.
12:15 pm - Lunch Break
1:15 pm - Panel Three – Privacy and Security of Identifiable Health Information in PHRs and Related Technologies: Expectations and Concerns
The third panel will provide information on and discuss consumer expectations and concerns related to the privacy and security of identifiable health information in PHRs and related technologies. It will also explore the attitudes of health care providers and industry groups to the privacy and security of PHRs.
2:50 pm – Panel Four – Perspectives on Privacy and Security Requirements for PHRs and Related Technologies
The final panel will address the need for privacy and security requirements for PHRs and related non-CE entities, in accordance with the study required by Congress. It will provide a forum for different views on the appropriate regulation, if any, or other requirements that should be applicable to non-CE PHRs and related service providers and technologies. This panel will have two sub-panels. The first sub-panel will include representatives of federal and state agencies with current enforcement authority. The second sub-panel will explore whether there is a need for regulation and other requirements and the pros and cons of different approaches to government regulation and private sector oversight.
4:20 pm – Closing: Joy Pritts, JD, HHS Chief Privacy Officer
4:30 pm – End